Hello all, I'm looking forward to seeing the pictures from those who participated in the last book giveaway, and I hope you all enjoy it and pass it along per the contest rules after you're done reading it. What the last few weeks have shown me is you can't put a price on making someone smile. The kind notes and supportive statements I've gotten from many of you have been humbling and appreciated beyond words. My wife and I are very blessed and thankful for each one you've sent, and we've come to a decision that I wanted to share with you all. From this day forward, I've decided to make the book available for free for any SMA family that wants a copy or copies of it. There's no catch, no strings attached, nothing - you can send me an e-mail at notafireexit@verizon.net at any time, for whatever reason, with your request and they'll be on their way. I'm not keeping a running tally of who asks and who doesn't - and honestly, I hope families come back multiple times asking for copies to give to friends, family, and anyone else they think it might be enjoyed by, or find useful at any fundraisers they may do. Got a bake sale coming up and you want 10 copies to sell to raise additional funds? No problem. Got a new co-worker who's never heard of SMA? Give them a copy. Never read it yourself? Done and done. In addition, I'm setting up a recurring donation of a dollar a day for both GSF and FSMA that I'll be doing every day until this disease is cured, and that's on top of any other donations or funds raised by book sales and I do personally and Milverstead Publishing does separately for every author. I can't let a day go by any longer where I feel like I haven't done something to try and help. I wish it was more, and if you can think of anything you'd like my help with to make even more of a difference, I will do whatever it takes. And make sure you check in at the Gwendolyn Strong Foundation and Families of Spinal Muscular Atrophy websites to see how you can help make a difference too. Have a great weekend! Chris P.S - You should be hearing more about the movie adaptation of Not A Fire Exit in the coming weeks as there's more exciting news around that on the horizon! :) CommentsMelissa Cesark 07/23/2010 11:04:32 This is a very kind act you are doing and is MUCH appreciated by MANY ! 07/23/2010 15:08:13 thank you so much for all you efforts and compassion. as a sma family, we greatly appreciate it all. 07/23/2010 20:11:27 I have been off the computer most of the day, partly because we were all scrambling in the heat for a few hours, then because we're apparently all still recuperating from scrambling in the heat. I was going on to bed without checking Twitter at all today, but something made me. I think it must have been your generosity :) It is amazing and more appreciated than you'll ever know. And I WILL get busy.... Tara 08/21/2010 05:55:51 YOur kindness is amazing, I Have SMA and it wonderful how much time and effort you are putting into finding a cure. THANK YOU! 09/07/2010 19:43:51 What a great thing you are doing. Donating money to cure SMA. I hope you sell lots. All SMA families How fantastic of you to do this.I look forward to reading a copy of your book.My grandson Conor has SMA1 and we live I'n the U.K.He is 7 years old,and thanks to leading respiratory specialist,John Bach at University Hospital i'n New Jersey Conor lives 09/22/2010 06:25:54 Leave a Reply |
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